Swedish politicians plan to open the database of DNA medical research data of the population for private insurance companies

2:08:00 PM
Swedish politicians plan to open the database of DNA medical research data of the population for private insurance companies -

since 1975, Sweden has taken a DNA sample of all newborns for purposes of medical research, and asked the parents' consent to do this end research. This means that over time, Sweden constructed the DNA database the most comprehensive worldwide all under 43 years. But now the politicians are planning to open this single database DNA research in law enforcement and the private insurance companies.

He was a treasure for the scientific community, while it held great risks to privacy that were not foreseen at the time. Scientists wanted to study Phenylketonuria (PKU), a hereditary deficiency of metabolism which, among other things, aspartame transforms common diet-soda sweetener in a deadly poison. A DNA database of the entire population where genes could be traced as it was a marvel, an Alexandria for research. Since 1975, parents were asked for consent to collect a blood sample from newborns to the medical research database.

as the basis of DNA data filled, he began to attract the attention of law enforcement. As in, "wait, there is a DNA database of the entire population? Not regulated? What would you say he is only for medical research?"

So now, politicians in Sweden came with boneheaded and misleading idea of ​​the opening of the basic search DNA data only (Google Translate link) for use beyond the good of mankind - and use its equipment against those who gave of their genome to it. Politicians have commissioned a report to see if, and how, the database must be open not only for law enforcement, but also for private insurance companies. (Hereditary disease? Go Up your premiums!)

This is, of course, an outrageous and audacious violation of the contract with the parents who have been promised the sample would be used only for the good of humanity terms of health research. The moment there is a suspicion it will be used against newborn sampled in the future - as is currently the case - instead of being used for the good of humanity as a whole, people do not provide the DNA database with more samples, or at least not enough samples to provide a searchable coverage.

Thus, politicians have destroyed medical research alluding they even considering break the initial contract. But even if research has been effectively destroyed, most parents do not know the blood sample can be used to give newborns higher insurance premiums in the future, so continue to consent to enter their newborn in the (now) enforcement. DNA Database

confidentiality remains your responsibility

UPDATE :. Andy Halsall tweets in response and adds: "If the data exists, it will be used", which is blunt but true

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